Being diagnosed with idiopathic pulmonary fibrosis (IPF) can be overwhelming at first. But talking with others can help. Share your thoughts and feelings with your healthcare team, family, and close friends. Patient support groups can be a great source of strength and knowledge. Listening to others with IPF talk about their experiences and challenges can give you great insights into living with IPF. If you experience anxiety or depression, talking with a therapist or psychologist may also be helpful.
Consider participating in the IPF community. Online support groups are a good way to meet other IPF patients and caregivers. In many cities, IPF support groups hold monthly meetings where you can get to know local patients and watch live presentations.
The Internet provides many ways to learn about IPF. When searching for IPF facts online, make sure you are using a reliable source. The websites listed on this site provide reliable and well-researched information about IPF for patients, families, and caregivers.
In addition, you’ll find helpful resources, including:
- The downloadable Know IPF Now patient brochure
- A downloadable guide on being prepared for questions your doctor may ask you
- A video to help you better understand how IPF affects your lungs and lifestyle, featuring patients sharing their experiences with IPF