Discover resources that provide idiopathic pulmonary fibrosis (IPF) patients with information about health education, IPF treatment centers, and financial assistance.*
- Genentech neither endorses nor is affiliated with these organizations. The information provided by Genentech or these organizations is meant for informational purposes only and is not meant to replace a healthcare provider’s medical advice.
Pulmonary Fibrosis Foundation
The mission of the Pulmonary Fibrosis Foundation (PFF) is to help find a cure for IPF, advocate for the pulmonary fibrosis community, promote disease awareness, and provide a compassionate environment for patients and their families.
Find symposiums, support group sessions, educational sessions, and other educational events sponsored by the Pulmonary Fibrosis Foundation.
Online educational seminars
Watch educational seminars that cover topics ranging from understanding IPF to being a patient advocate.
IPF treatment center directory
PFF provides a comprehensive list of centers in the United States for the treatment of IPF.
The Pulmonary Fibrosis Foundation Care Center Network
Currently established in 9 leading academic medical centers, the PFF Care Center Network provides a standardized, multidisciplinary approach to patient care. This model of comprehensive patient care will help identify and establish best practices, determine the impact of specific interventions, and improve the quality of life of patients. The Care Center Network will incrementally expand to include 40 medical centers by 2015.
The Pulmonary Fibrosis Foundation Patient Registry
The PFF Patient Registry is anticipated to become the largest database of PF patient records, with the farthest demographic reach in the country. It will provide data essential for improving the understanding of the epidemiology, incidence, prevalence, natural history, and other clinical characteristics of pulmonary fibrosis. All the pilot sites of the Care Center Network are participating in the PFF Patient Registry.
Research and clinical trials
Learn more about clinical trials and get information about participating in research studies within the United States.
American Lung Association
The American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease through education, advocacy, and research.
National Heart, Lung, and Blood Institute
The Institute provides research and education about the prevention and treatment of heart, lung, and blood diseases.
American Association of Cardiovascular and Pulmonary Rehabilitation
AACVPR is a multidisciplinary professional association of health professionals who serve in the field of cardiac and pulmonary rehabilitation. Patient resources for pulmonary rehabilitation include a helpful overview, patient videos, and a broad range of links to other online patient tools.
The Caring Voice Coalition
The Coalition provides insurance assistance, including help with Medicare/Medicaid problems.
National Patient Travel Center
This charitable organization strives to ensure no financially needy patient is denied access to distant specialized medical evaluation, diagnosis, or treatment for lack of a means of long-distance medical air transportation.