Get connected to idiopathic pulmonary fibrosis (IPF) support through forums, groups, and websites.*
- Genentech neither endorses nor is affiliated with these organizations. The information provided by Genentech or these organizations is meant for informational purposes only and is not meant to replace a healthcare provider’s medical advice.
Pulmonary Fibrosis Foundation
The mission of the Pulmonary Fibrosis Foundation (PFF) is to help find a cure for idiopathic pulmonary fibrosis (IPF), advocate for the pulmonary fibrosis community, promote disease awareness, and provide a compassionate environment for patients and their families.
Local support group directory
The Pulmonary Fibrosis Foundation maintains a state-by-state list of local support groups dedicated to patients and families affected by pulmonary fibrosis and IPF. Contact information and locations are provided.
Inspire IPF and pulmonary fibrosis forums
This is a health and wellness support group community blog. Here, you can search for groups to join, find discussions on specific IPF and pulmonary fibrosis topics, and join in conversations with others who share your interests and concerns.
Breathe Support for Patients
This is an online support group for pulmonary fibrosis patients who support one another as they learn from each other. This is a safe environment where patients can share stories, concerns, and fears about living with pulmonary fibrosis.
Breathe Support for Caregivers
This is an online support group for the caregivers of patients with pulmonary fibrosis. Here, caregivers can share stories, concerns, and fears, because pulmonary fibrosis is a diagnosis that affects the whole family.
Huff N Puff
This forum was created to help people with interstitial lung disease find support. Discussions by forum members cover a wide range of topics, from current research and clinical trials to personal triumphs over the challenges of living with lung disease.
This community forum is where patients of all types exchange information and receive support from their peers. There are specific discussion groups for people with IPF as well.
National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is a unique federation of voluntary health organizations dedicated to helping people with rare orphan diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
This community compiles a comprehensive list of support groups throughout the United States.